Internal Reference Number: FOI_8087
Date Request Received: 07/08/2024 00:00:00
Date Request Replied To: 20/08/2024 00:00:00
This response was sent via: By Email
Request Summary: Haemophilia B and Von Willebrand Disease
Request Category: Researcher
| Question Number 1: Could you please provide answers to the following five questions related to the incidence and treatment of Haemophilia B and Von Willebrand Disease? Q1. How many patients has your Trust treated (for any medical condition) in the past 3 months with the following drugs: • Alphanate • Alprolix • BeneFIX • HaemateP • Idelvion • Refixia • Rixubis • Veyvondi • Voncento • Wilate • Willfact | |
| Answer To Question 1: • Alphanate - 0 • Alprolix -0 • BeneFIX - 0 • HaemateP - 0 • Idelvion - 0 • Refixia - 0 • Rixubis - 0 • Veyvondi - <5 • Voncento - 0 • Wilate - 0 • Willfact - 0 | |
| Question Number 2: How many patients have been treated in the past 3 months with: • Gene therapy for Haemophilia B ONLY • Desmopressin for Von Willebrand Disease ONLY • Tranexamic Acid for Von Willebrand Disease ONLY | |
| Answer To Question 2: Gene therapy for Haemophilia B ONLY - 0 • Desmopressin for Von Willebrand Disease ONLY - 0 • Tranexamic Acid for Von Willebrand Disease ONLY - <5 | |
| Question Number 3: Of the patients that were treated with Veyvondi in the past 3 months, how many patients received treatment: • During surgery • On demand to treat bleeding episodes | |
| Answer To Question 3: During surgery - 0 • On demand to treat bleeding episodes - <5 | |
| Question Number 4: Of the patients that were treated with Voncento in the past 3 months, how many patients received treatment: • During surgery • On demand to treat bleeding episodes | |
| Answer To Question 4: During surgery - 0 • On demand to treat bleeding episodes - 0 | |
| Question Number 5: How many patients are registered with your trust for the following diseases: • Haemophilia B • Von Willebrand Disease • Von Willebrand Disease - paediatric patients (age 17 or under) | |
| Answer To Question 5: • Haemophilia B = 11 • Von Willebrand Disease - total patients = 95 • Von Willebrand Disease - paediatric patients (age 17 or under) = 8 | |
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Our staff at 91Ó°ÊÓ District Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.
