91Ó°ÊÓ

Sunday 22 December 2024
91Ó°ÊÓ Foundation Trust

FOI_8141

Internal Reference Number: FOI_8141

Date Request Received: 06/09/2024 00:00:00

Date Request Replied To: 01/10/2024 00:00:00

This response was sent via: By Email

Request Summary: Treatment and management of patients with Lupus

Request Category: Companies

 
Question Number 1:
Does 91Ó°ÊÓ NHS Foundation Trust treat patients diagnosed with Lupus (systemic lupus erythematosus including lupus nephritis)?

If No, please see question 2

If Yes, please see questions 3 & 4
 
Answer To Question 1:
Yes
 
Question Number 2:
If 91Ó°ÊÓ NHS Foundation Trust does not treat Lupus (systemic lupus erythematosus including lupus nephritis) are patients referred to a tertiary/ specialist treatment centre?

If Yes, please state which treatment centre.
 
Answer To Question 2:
N/A
 
Question Number 3:
Does 91Ó°ÊÓ NHS Foundation Trust have local guidelines/ clinical pathways/ protocols (including shared care protocols) for the treatment of patients diagnosed with Lupus (systemic lupus erythematosus including lupus nephritis)?

If Yes, please can a copy be provided
 
Answer To Question 3:
There are no local guidelines, pathways or protocols. However the Trust do follow national and international guidance.
Complex patients are discussed at a regional level in the monthly CTD meeting. The Trust submit data on lupus patients on Belimumab to the national registry (BILAG).
For lupus nephritis we would share care with the nephrologists, however the Trust also have a SCA (shared care agreement) with primary care to prescribe drugs like mycophenolate mofetil.
 
Question Number 4:
How many patients were treated at 91Ó°ÊÓ NHS Foundation Trust for Lupus using belimumab in 2023?
 
Answer To Question 4:
<5
 
Question Number 5:
How many patients were treated at 91Ó°ÊÓ NHS Foundation Trust for Lupus using rituximab in 2023?
 
Answer To Question 5:
0
 
Question Number 6:
How many patients were treated at 91Ó°ÊÓ NHS Foundation Trust for Lupus using voclosporin in 2023?
 
Answer To Question 6:
We have not used this drug in this Trust.
 
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